Wednesday, June 12, 2013
Quick
update: After keeping Hayden home for a couple of weeks so that we
could give his immune system a break...... we put Hayden back in school a
week ago last Monday. He started complaining of more pain at night and
by Thursday he had a low grade fever and felt so bad he said he could
not walk or get out of bed. Scott carried him to our pediatrician's
office. He had strep again. We are back on
antibiotics and we might stay on them for a couple of months until we
can be seen by a specialist. We have appts scheduled with a doctor in
Maryland and one in Arizona in September (not sure yet which one we are
going to pick) and as a back up we have another appt with a doctor in CT
in mid December. I have talked to several moms across the country who
have kids with Pandas and that has been really helpful. This week
Hayden is back in school and doing fine. He has his ups and downs, but
night time seems to be be the hardest for him to deal with the pain.
Prayers for direction on the best doctor would be nice. Love u all!
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